MTMCNMREGISTRY.ORG - Mtmcnmregistry

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MTMCNMREGISTRY.ORG Register Domain Names at GoDaddy.com, LLC 9 years ago . Web Server used 85.91.42.50 IP Address at Host Europe GmbH provider in Slough, United Kingdom . You can check the websites hosted on same 85.91.42.50 IP Server.

Below are all the details of the Server Info, Domain Info, DNS Name Server, Alexa Traffics Ranks, Similar Websites .
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Server IP Address
31.170.121.177 See detail
Hosted City
Slough
Hosted Country
GB United Kingdom (GB)
Hostname
nmd2.servers.prgn.misp.co.uk
Location Latitude
51
Location Longitude
0

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Title

Myotubular and Centronuclear Myopathy Patient Registry – Accelerating the pace of research and treatment for MTM and CNM.

Length: 121

Meta Description

Accelerating the pace of research and treatment for MTM and CNM.

Length: 64

There are emails found!.

1. [email protected]

Domain mtmcnmregistry.org was created 9 years 3 months 25 days ago at https://www.godaddy.com

Registrar GoDaddy.com, LLC See All
Registrar WHOIS Server whois.godaddy.com
Registrar URL https://www.godaddy.com
Creation Date 2013-01-24 9 years 3 months 25 days ago
Updated Date 2020-12-14 1 years 5 months 4 days ago
Abuse Email [email protected]
Abuse Phone +1.4806242505

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Top Related Sites of mtmcnmregistry.org

1. MTM and CNM Patient Registry - Home | Facebook

facebook.com - MTM and CNM Patient Registry. 192 likes · 1 talking about this. The Myotubular & Centronuclear Myopathy Patient Registry is an international database specific to these conditions. It …


2. Patient Registry - Myotubular Trust

myotubulartrust.org - If these categories don’t apply to you, but you would like to receive updates and newsletters from the registry, please email [email protected] and ask to be added to their general mailing list. Join here


3. The Myotubular and Centronuclear Myopathy (MTM

treat-nmd.org - Assist doctors and other health professionals by providing them with up-to-date information on managing MTM and CNM, to help them deliver better standards of care for their patients. Website: www.mtmcnmregistry.org. Email Address: [email protected] Secondary Email Address: [email protected]


4. Myotubular and Centronuclear Myopathy Patient Registry

clinicaltrials.gov - Aug 21, 2019  · The Myotubular and Centronuclear Myopathy Patient Registry (also referred to as the 'MTM and CNM Registry') is an international, patient-reported database specific to these conditions. More details and online registration are available at www.mtmcnmregistry.org. The Myotubular and Centronuclear Myopathy (MTM & CNM) Patient Registry is managed ...


5. Myotubular and Centonuclear Myopathy Patient Registry

gardn.org.au - E: [email protected] Adding New Patients to Registry: We welcome the registration of: All patients, with a myotubular myopathy or centronuclear myopathy diagnosis, which has been confirmed via genetic testing or muscle biopsy


6. X-Linked Myotubular Myopathy - GeneReviews® - NCBI …

nih.gov - Feb 25, 2002  · X-linked myotubular myopathy (X-MTM), also known as myotubular myopathy (MTM), is characterized by muscle weakness that ranges from severe to mild. Approximately 80% of affected males present with severe (classic) X-MTM characterized by polyhydramnios, decreased fetal movement, and neonatal weakness, hypotonia, and respiratory failure.


7. Myotubular and Centonuclear Myopathy Patient Registry

guard.org.au - E: [email protected]d.eu. Adding New Patients to Registry: We welcome the registration of: All patients, with a myotubular myopathy or centronuclear myopathy diagnosis, which has been confirmed via genetic testing or muscle biopsy


8. Myotubular and Centronuclear Myopathy Patient Registry

checkorphan.org - Mar 06, 2020  · The Myotubular and Centronuclear Myopathy Patient Registry (also referred to as the 'MTM and CNM Registry') is an international, patient-reported database specific to these conditions. More details and online registration are available at www.mtmcnmregistry.org.


9. Myotubular and Centronuclear Myopathy Patient Registry

cardiff.ac.uk - More details and online registration are available at www.mtmcnmregistry.org. Detailed Description. The Myotubular and Centronuclear Myopathy (MTM & CNM) Patient Registry is managed and operated by the John Walton Muscular Dystrophy Research Centre at Newcastle University, in partnership with the Myotubular Trust, and is part of the TREAT-NMD ...


10. Taking part in clinical trials | Muscular Dystrophy UK

musculardystrophyuk.org - Duchenne and Becker muscular dystrophies. National and global registries have been developed for Duchenne and Becker muscular dystrophies. People with Duchenne or Becker muscular dystrophy can register with the UK DMD Registry which is managed by Action Duchenne. For more information about this registry you can phone 0208 556 9955.



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